Видео с ютуба National Organization For Rare Disorders

What is a Rare Disease?

What is a Rare Disease?
Rare Disease & Emotional Wellbeing: Strategies for Coping

Rare Disease & Emotional Wellbeing: Strategies for Coping
10 Tips for Newly Diagnosed Rare Disease Patients and Families

10 Tips for Newly Diagnosed Rare Disease Patients and Families
National Organization for Rare Disorders 25th Anniversary

National Organization for Rare Disorders 25th Anniversary
Tim Cote, MD, MPH, Chief Medical Officer, National Organization for Rare Disorders

Tim Cote, MD, MPH, Chief Medical Officer, National Organization for Rare Disorders
National Organization for Rare Disorders (NORD) – Commemoration of Rare Disease Day 2018

National Organization for Rare Disorders (NORD) – Commemoration of Rare Disease Day 2018
What is it like to have a rare disease?

What is it like to have a rare disease?
What is it like to have a rare disease?

What is it like to have a rare disease?
Rare Disease Registry: Benefits of Registry

Rare Disease Registry: Benefits of Registry
The View from the National Organization for Rare Disorders | Rare Disease Symposium 2025

The View from the National Organization for Rare Disorders | Rare Disease Symposium 2025
Stay Covered: Open Enrollment Essentials for Rare Disease Families

Stay Covered: Open Enrollment Essentials for Rare Disease Families
10 Things You May Not Know About Rare Diseases

10 Things You May Not Know About Rare Diseases
Countdown to Rare Disease Day 2026!

Countdown to Rare Disease Day 2026!
National Organization of Rare Disorders - 25th Aniversary Video

National Organization of Rare Disorders - 25th Aniversary Video
Pamela Gavin, COO, National Organization for Rare Disorders at the BIO Buzz Center 2015

Pamela Gavin, COO, National Organization for Rare Disorders at the BIO Buzz Center 2015
National Organization for Rare Disorders - A CPAN Advocacy Chat

National Organization for Rare Disorders - A CPAN Advocacy Chat
What is a rare disease?

What is a rare disease?
Rare Disease Drug Development Education Series Trailer

Rare Disease Drug Development Education Series Trailer
From Data To Cures: Speeding The Way For Rare Diseases

From Data To Cures: Speeding The Way For Rare Diseases